Resources for your patients
- The American Porphyria Foundation was founded in 1982 to educate doctors and the general public, raise funds for research, and advocate for better policy and patient care.
- Genetic and Rare Diseases Information Center (GARD) of the National Institutes of Health is a resource for patients, their families, and others with an interest in genetic conditions and rare diseases.
- The National Organization for Rare Disorders (NORD) was founded in 1983 as a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases.
- The Merck Manual offers an informative page about AIP and its signs and symptoms.
- The U.S. National Library of Medicine is the world’s largest medical library. Its porphyria page draws from information from the National Institutes of Health and other sources.