Saturday, December 14, 2013

Research Studies Available

The Porphyria Consortium


Research Studies Available!

Dear APF Members,
The Porphyrias Consortium is pleased to let you know that they are enrolling patients in studies for the following diseases. To read more about each study, including eligibility criteria and who to contact, please follow the links below:
A confirmed diagnosis of a porphyria or have a relative who has been diagnosed with a porphyria


Acute Intermittent, Porphyria Hereditary Coproporphyria, or Variegate Porphyria


Erythropoietic Protoporphyria (EPP)


Porphyria cutanea tarda (PCT)


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If you have not done so already, please join the Porphyria Registry.
Joining the Porphyria Registry is crucial in determining the incidence of Porphyria in the United States.



"Remember.....Research is the key to your cure!"

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