Saturday, November 16, 2013

Rare Connect have you joined yet?




Have you joined rare connect yet?  If not please take some time to check it out from around the world all types of people with porphyria coming together to unite.

Check it out and sign up its free to do so.

https://www.rareconnect.org/en/community/porphyria

"Remember.....Research is the key to your cure!"


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Organizations around the world unite for Porphyria links

The following organizations have websites in English The American Porphyria Foundation has a very extensive website, including a section ...