Saturday, November 16, 2013

Rare Connect have you joined yet?




Have you joined rare connect yet?  If not please take some time to check it out from around the world all types of people with porphyria coming together to unite.

Check it out and sign up its free to do so.

https://www.rareconnect.org/en/community/porphyria

"Remember.....Research is the key to your cure!"


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Happy Thanksgiving 2017

Happy Thanksgiving everyone 2017