Wednesday, November 27, 2013

In Memory of Ellane Heflin...

 The APF is sad to announce that Ellane Heflin, mother of APF Executive Director, Desiree Lyon Howe, passed away Nov 26 in Destin, Florida at age 85. Ms. Heflin, who had AIP, was an APF member since it was founded 31 years ago.  To encourage others to participate in porphyria research, Ms. Heflin volunteered as a research patient a number of times since 1982 and volunteered for her last porphyria research project at age 84. She was the oldest person and APF member to participate in porphyria research to date.

 She is survived by her children, Elizabeth Ruth Petersen, April Heflin, Deborah Fedele, Dr Joseph Heflin, and Desiree Lyon Howe, and by her grandchildren, Lelia Brougher, Spring Howell, Miranda Dennis, Patrick Petersen, Parker Heflin, Kelsey Heflin, Sarah Taylor and Ian Murdoch, and by her great grandchildren, Elizabeth Brougher, William Brougher, Chloe Mettenbrink, and Gage Mettenbrink and by her sister, Doris Jackson and brother, Louis Workman.

The funeral will take place in Henegar, Alabama on Saturday, November 30, 2013.

We sincerely express our sympathy to Ellane Heflin's family.  Memorials and expressions of sympathy in her memory can be sent to the APF, 4900 Woodway Dr, Suite 780, Houston, TX. 77056.

"Remember....Research is the key to your cure"

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