Thursday, September 5, 2013

Porphyria Awareness & Fundraising Events!

  Past and Present Porphyria Awareness &  
Fundraising Events.  
*Events are listed below with the most recent Event first.*


~ Official APF Porphyria Awareness T-Shirts are Available Now!    Read more....

~ Running over obstacles to raise Awareness for Porphyria​.  Read more....

~ Amy Chapman's Porphyria Awareness and Fundraising Campaign.  Read more....

~ Cook Brothers and Family Promote Awareness Week​.  Read more....

~ Student Alessia Callahan Educates Classmates during National Porphyria Awareness Week.  Read more....

~ Monica's Porphyria Awareness Week Event.  Read more....

~ FDA Letters From People with EPP​.  Read more....

Coming up soon will be a special event that Polly Barton Harvard will share in and she hopes that you will to more details to come....


Remember.....Research is the key to your cure!

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