Fundraiser or Special Event Volunteer
1) What you are asking them to do and why;
2) What porphyria has meant to you;
3) How the APF has affected your life; and
4) How to donate.
“Remember…..Research is the key to your cure!”
Bright Ideas! This is a place for kids to learn from others with EPP, to share their own tips and tricks on things like what to wear...