Fundraiser or Special Event Volunteer
1) What you are asking them to do and why;
2) What porphyria has meant to you;
3) How the APF has affected your life; and
4) How to donate.
“Remember…..Research is the key to your cure!”
#PAW2018 This is one of the hereditary hepatic porphyrias. Its inheritance is autosomal dominant. The deficient enzyme is porphobilinog...