Friday, June 7, 2013

The Porphyria Consortium, APF, Protect the Future Conference


The Porphyria Consortium, APF, and the Protect the Future doctors gathered in Lucerne Switzerland to attend the 2013 International Porphyria and Porphyrins Conference.  The photo below is of many of the esteemed group of scientists/researchers and clinicians.



PorphyriaConferenceinLucernSwitzerland
Left to Right:   Howe, Makuda, Yaziki, Naik, Thapar, Marcero, Lyon, Ludke, Balwani, Latimer, Gou, Caballes, Bloomer, Singal, Bonkovsky, Perini, Bloomer, Mittal, Anderson



The next meeting in 2015 will be in Dusseldorf, Germany.  Hopefully, more of you will be able to attend the outstanding Patient Day gathering, too.


We are all grateful to this group of physicians, both the present experts and the next generation of experts.  When your own physicians need information about your porphyria, they look to the major medical textbooks and journal articles that the experts have written.

We are grateful; too, for the research they are performing and encourage you to find out more about the research.  You have the opportunity now to participate in important research projects, which only require your time and a few tests.

Please call the APF for information.  1.866.APF.3635.

Remember.....Research is the key to your cure!

No comments:

Post a Comment

EPP Have you ever wondered why you have been sunburnt on a cloudy day?

            EPP Have you ever wondered why you have been sunburnt on a cloudy day? The total dose of UV radiation reaching the ...