Wednesday, May 29, 2013

New Panhematin brochure available for your physicians.



New Panhematin brochure available for your physicians.


Panhematin®
The APF has produced a new Panhematin® brochure.  If you would like a copy of the new brochure for your physician, please contact the APF and we will forward one to you promptly.  Remember, too, that the APF will send your doctor a complimentary comprehensive doctor packet for the acute porphyrias. Call  1.866.APF.3635  or email porphyrus@aol.com .  If your physicians have questions about the administration or use of Panhematin, we will then send an instruction form or arrange a consultation with a porphyria expert if needed.


For the many patients who are taking Panhematin®, please note that Recordati Rare Diseases, Inc. has purchased Panhematin® from Lundbeck Pharmaceutical.  Recordati Rare Diseases, Inc. has assured us that there should be no interruption in receiving the Panhematin® treatment and that the product is the same as it has always been.  In fact, for the next number of months, the telephone numbers and delivery services that were available through Lundbeck Pharmaceutical will remain the same, as well. 


FYI  For questions from healthcare professionals regarding general use and administration of Panhematin®, please call Recordati Rare Diseases at 1-866-402-8520.  Your call will be answered by a member of the Lundbeck staff on behalf of Recordati Rare Diseases until late 2013.   Your physician or hospital pharmacy can order Panhematin® through a wholesaler of their choice.  Healthcare professionals can call 1-888-514-5204 to receive help with regular and emergency shipments, Monday thru Friday, 9 am to 6 pm EST.  After hours and emergency orders, call 1-800-673-6723.   In an emergency event, when the hospital/physician/wholesaler does not have Panhematin® in stock, Recordati Rare Disease will ship directly from its Lavernge, TN distribution site via an expedited delivery service to anywhere in the U.S.-usually within 12-14 hours. 


During the 2013 International Porphyria Congress Patient Day meeting, Dr. Jean Charles Deybach spoke about the great benefit of early treatment withheme therapy ( Panhematin and Normosang)

  • Rapid clinical improvement.
  • Decreased urinary ALA/PBG 2-3 days
  • Mean abdominal pain duration 2-3 days
  • No further severe neurological complications
  • No major side effects in acute administration
  • Safe use during pregnancy (Badminton & Deybach, 2006; Marsden & Rees, 2010)


Remember Research is the key to your cure!

No comments:

Post a Comment

Advance Care Planning- Prepare NOW!

Making decisions in health care and ethics. Why prepare?  Prepare for the unexpected. It seems we often go through the motions of prepar...