Sunday, May 5, 2013

Michele Ludewig PCT


Michele Ludewig

Type of Porphyria: 
Porphyria Cutanea Tarda (PCT)

Michele LudewigI was diagnosed with Porphyria Cutantea Tarda (PCT) in 1983 at age thirty seven. I had always had horrendous skin and infections of the skin. Within twenty-four hours of sunbathing, I broke out in patches of blisters on my forearms. This was the first symptom. But for a long time before this, my hair had been growing much faster than normal and my fingernails would split and crack off the top layer. My face had developed a brown racoon mask. But I didn't feel ill.
These blisters intensified with more sun exposure and broke open into sores which wouldn't heal. My skin was so thin that the slightest bump would tear a piece of it off and then another sore to heal.  It took over eight months to get it under control the first time. I had to get really pushy with my family doctor to get to a specialist, but when I did, he was a gem and was familiar with porphyria. God bless him.  We have a list of do's and don'ts that have worked pretty well.
I came out of remission two more times, the last being in 1990. I have had some other odd and unexplained illnesses and experiences and hope to get to the heart of it all as time goes by.
Blessings to all of you.


Remember....Research is the key to your cure!

No comments:

Post a Comment

Advance Care Planning- Prepare NOW!

Making decisions in health care and ethics. Why prepare?  Prepare for the unexpected. It seems we often go through the motions of prepar...