Here's a link to the American Porphyria Foundation in case you are wondering what in the world is Porphyria. :) I have been diagnosed since 1997. So many of you were in HS with me while I was "getting sick". That is when I started having symptoms but I was born with it. Remember me passing out in school & leaving by ambulance, having to quit sports teams I played on with you, being missing from classes a lot, in the nurses station all the time, having rapid weight gain? It was confusing & scary. I lost many friends who had never been exposed to someone with a chronic illness before...let alone someone their own age having something they've never heard of. Some people, even those close to me, even accused me of "faking it" for attention. I do not blame them. People fear what they do not know. So this is a big reason I want to educate as many people about Porphyria as possible. I feel this applies to other things that may be unknown to the masses like other rare diseases, cancer, people with special needs or disabilities.
Thank you Sarah Lee for sharing your personal story of what you have went through and how you have overcome and managed Porphyria.