Monday, April 22, 2013
Awareness Week What did you do to help spread the word?
So how did you do with raising Awareness for porphyria last week? Your comments are welcome to encourage others to support, share and discuss!
Did you tell your Doctors?
Did you let friends know?
Were you able to share how it affects you personally?
What about family do they know about the condition?
Do you know where to get correct information?
Learn about all the types, side effects, treatments available and so much more.
Remember~ Research is your key to a cure!
Bright Ideas! This is a place for kids to learn from others with EPP, to share their own tips and tricks on things like what to wear...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
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