Monday, March 4, 2013
www.porphriafoundation.com/get-involved/join-the-registry & Clinical Trials.gov
A service of the U.S. National Institutes of Health Home is a great way to look of your type of Porphyria see what studies are under way and what studies have completed.
Just one more way to connect and help all Porphyria and rare Diseases!
Type of Porphyria: Acute Intermittent Porphyria (AIP) Sive Ngalo of Ekasi Hub interviewed Athi Koti. Below is my story ...
Erythropoietic Protoporphyria What is erythropoietic protoporphyria? The word ‘erythropoietic’ means associated with red blood cells (‘...
Happy Thanksgiving everyone 2017
#PAW2018 This year, each day we will bring you a member story of each type, a Medical Fact on each type, Medications approved ...