- Our quarterly newsletter — news about porphyria research and clinical studies, scientific meetings and member get-togethers, and stories about the doctors working in the porphyria field and about members like you;
- Access to the APF In Touch network — the ability to connect with others who share your diagnosis;
- Free participation in telephone conference calls with top researchers in the porphyria field;
- Knowledge—that you are an important part of keeping reliable medical information about porphyria available to those who are newly diagnosed, or at a crossroads in their porphyria treatment, and frightened;
- And much more!
4900 Woodway, Suite 780
Houston, TX 77056