Thursday, February 23, 2012

Walking for the APF~How can you join and Help

JoAnna Floyd is setting a date soon June 2012 TBD for a walk to Help raise funds for the APF.  Can you support her, can you walk, donate or sponsor a walker?  Are there any volunteers near Pottstown PA?  What about doing a walk in your own area and inviting friends, family, co-workers?

This is a great time to start planning and thinking how you can help and support ALL in your community, stay health and be well!

For more information on how you can join or participate please contact the APF@
 1- 866-APF-3635, if you have a planned event and need any supplies, brochures, etc they will be happy to help.  If you need wristbands please email AmyLChapman1992@gmail.com

Please stay tuned for more information soon to come.

Meet Dr. Peter Tishler

Peter V. Tishler, M.D.

Dr. Peter Tishler is Associate Professor of Medicine at the Harvard Medical School, a Medical Geneticist at the Center for Human Genetics at the Brigham and Women's Hospital in Boston, Massachusetts, and Director of Residency Training at the Brockton/West Roxbury VA Medical Center.

His clinical interests are in the areas of public health genetics, genetic disease in adults and the porphyrias. Dr. Tishler also trains medical students, residents, genetic counseling students and clinical genetics fellows.

Boston Magazine has listed Dr. Tishler as one of Boston's Top Doctors For Women in the area of genetic counseling. We can understand why. His Porphyria patients are devoted to him and always thank the APF for providing his name as a Porphyria specialist.

Saturday, February 11, 2012

The Positives Of Purple.

We all loved this so much we put it on the blog for all to read.  Thanks to July K.  for all her hard work.


The Positives of Purple.

For as many years as I can remember, my favorite color has always been Purple.

As one who studies colors and their meanings, I thought I would share some with you.

Purple represents:
Ambition - the will to keep going.
Royalty – of the Kings and Knights of old.
Power – the strength within.
Valor – courage, virtue, and ethics.

But wait, purple is a mixture of others, Red and Blue.

Red represents:
Passion – in what you hold true.
Strength – in ourselves.
Vigor - Physical or mental strength, energy, or force.
Love – to have and share.

Blue represents:
Tranquility – the calmness and peace within.
Patience – a learning experience in itself.
Understanding – from others and of oneself.
Changeability – the moment-to-moment awareness and adjustments we make.

On this new journey in my life, I have given Purple some new meanings.
These may mean different things to you:
Family
History
Unity

The next time you find yourself fortunate enough to catch a Rainbow in the sky, take note. Purple is the last color to show, and the hardest to see. But when it does, the Rainbow is complete.

Important EPP Survey URGENT ASAP!!!

Important EPP Survey Dear EPP Community, As you know, the diagnosis of EPP is often delayed for many years. Researchers at the Icah...