Monday, December 17, 2012

Would you like to share your Porphyria Story?

If you would like to share your story about your Porphyria please email me your story, name and type.  By taking some time to think about your experience I hope that it will encourage others to cope and learn what each of us go through on a daily basis.

I do have some additional wristbands 2/6.00 shipping is free and 100% go to the APF for Protect the Future Program.  You can email me at  I have a few Blue and purple left.

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