Wednesday, December 26, 2012

Safe/UnSafe Drugs In Acute Porphyria's


Safe/Unsafe Drugs    Dr. Peter V. Tishler, who is a porphyria expert at Harvard/ Brigham and Women’s Hospital in Boston, has been instrumental in overseeing and updating the APF Safe/Unsafe Drug
List for acute porphyria.  Dr. Tishler is kindly updating the list again and wants your input.  Therefore, if
you have been negatively affected by a specific drug, please contact the APF.  We will then put you directly in contact with Dr. Tishler to discuss your experience.  When you report a drug, please have on
hand, the name of the drug, the dose, and a synopsis of what happened to you when you took the
drug.  As you know, the Safe/Unsafe Drug List is extremely important for people with acute porphyrias,
so your input is very important. It is often a lifesaving tool for the patients and their doctors.  
Dr. Tishler is a clinician/researcher in human genetics, including polycystic kidney disease, chronic obstructive pulmonary disease, Fabry’s disease, and the porphyrias.  We are fortunate to have porphyria specialists, like
Dr. Tishler, to devote himself not only to our present health needs but to help assure a healthier future for each of us.  
If you have any questions, please contact the APF immediately.

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