Saturday, October 27, 2012
Important upcoming Events Get involved!
Important upcoming Events
A Charity Paintball Game to benefit the
American Porphyria Foundation
November 4, 2012 9:00 am. @ Paintball Explosion Park
601 Dundee av., East Dundee, Illinois 60118
For more info go to http://www.
Boston Patient Meeting with Dr. Peter V. Tishler &
Dr. Herbert Bonkovsky
You are invited to an American Porphyria Foundation Patient Meeting with Renowned Porphyria Experts Dr. Peter V. Tishler & Dr. Herbert Bonkovsky
November 12, 2012, 5:30-8:00 PM EST @Brigham Shapiro Building Shapiro Board Room (First Floor), 70 Francis Street, Boston, MA 02115
For more information go to http://www.
APF Exhibit at the American Society of Hematology.
The American Porphyria Foundation will host an Exhibit Booth at the Annual American Society of Hematology Convention at the Georgia World Congress Center, Atlanta, GA, December 8-10, 2012.
We are in need of volunteers to help man the Exhibit booth (dates and times are listed below), to educate eight thousand physicians who will attend the meeting. This is a wonderful opportunity for APF members in the Atlanta area to educate physicians about porphyria by distributing pertinent medical information and share your own experience with the disease. Together we can enhance awareness and education of the porphyrias. If you would like to be a part of this exciting opportunity, please e- mail Yvette firstname.lastname@example.org or call (713) 266-9616.
For Exhibit dates and times and contact information visithttp://www.
"Remember......Research is the key to your cure!"
Bright Ideas! This is a place for kids to learn from others with EPP, to share their own tips and tricks on things like what to wear...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
4. The Pain Scale Is Useless to Us There’s that pain scale, numbered one through ten, with increasingly dour expressions on the faces...