Wednesday, October 27, 2010

Welcome.

Welcome to the American Porphyria Foundation Blog.

With all the information on the web sometimes it can be tough to get the "straight scoop". To that end the APF (American Porphyria Foundation) will be providing content and information to assist everyone that suffers from any of the 8 sub-diseases that Porphyria includes.

We are here for you :). Talk to you soon.

Important EPP Survey URGENT ASAP!!!

Important EPP Survey Dear EPP Community, As you know, the diagnosis of EPP is often delayed for many years. Researchers at the Icah...