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Showing posts from April, 2012

Meet Dr. Karl Anderson

Karl E. Anderson, M.D.
Professor, Division of Gastroenterology and Hepatology

Karl E. Anderson, M.D.
Professor of Preventive Medicine and Community Health
Internal Medicine, and Pharmacology and ToxicologyUniversity of Texas Medical Branch
301 University Blvd.
Galveston, TX 77555-1109
Biosketch A graduate of the Johns Hopkins University School of Medicine, Dr. Anderson completed his residency and postgraduate training in gastroenterology at the New York Hospital-Cornell Medical Center. He was a member of the faculty at the Rockefeller University, Cornell University Medical College and New York Medical College before coming to UTMB in 1987. He directs the Division of Human Nutrition in the Department of Preventive Medicine and Community Health, and is an active clinical investigator particularly on the General Clinical Research Center (GCRC), where he is also Associate Program Director. He is PI for UTMB's NIH K30 grant that supports a variety of clinical research education programs, Dir…

Finding a Good Doctor

The American Porphyria Foundation promotes comprehensive care necessary for treating individuals with Porphyria.  This section of our website offers suggestions for finding a local doctor who can manage your Porphyria, options for having your doctor consult a Porphyria specialist, and information on arranging a visit to a Porphyria clinic.
Because Porphyria is so rare, few physicians have experience treating patients with the disease.  Most patients are in fact treated But the APF can help by putting your doctor's office in touch with a Porphyria specialist who can offer guidance on your care.
For those who need a diagnosis, you may be able to obtain a consultation at Porphyria clinic. Call the APF to reach a porphyria expert at a porphyria center.  The APF office will also guide you to doctors who are not experts but are knowledgeable about porphyria. You may be asked to send your blood, urine, and stool samples for evaluation in advance of a clinic appointment.  Especially if y…

"Raising Awareness" What Does this mean to YOU?

"Raising awareness" is a phrase that advocacy groups commonly use when promoting a particular issue, organization, or event. Akin to consciousness raising, raising awareness refers to alerting the general public that a certain issue exists and should be approached the way the group desires. Common subjects include certain diseases (e.g. breast cancerAIDS), conflicts (e.g. the Darfur genocideglobal warming), movements (e.g. GreenpeacePETAEarth Hour), andpolitical parties or politicians.The term awareness raising is also used in the Yogyakarta Principles against discriminatory attitudes[1] and LGBT stereotypes, as well as the Convention on the Rights of Persons with Disabilities to combat stereotypesprejudices, and harmful practices toward people with disabilities.[2]Since informing the populace of a public concern is often regarded as the first step to changing how the institutions handle it, raising awareness is often the first activity any advocacy group engages i…

National Porphyria Awareness Week April 22-28, 2012 is all about YOU

The challenge of living with porphyria starts with how little is known about it among friends, family and the medical community. That is why National Porphyria Awareness Weekis so important. It provides each of YOU with the opportunity to enhance porphyria awareness among the public and medical professionals right where you live.Many of you helped last year, setting up at hospital Health Fairs, seminars and grand rounds, gaining newspaper and television interviews, exhibiting at conventions. Some members even created their own campaigns to advance porphyria awareness, but we need more of you to: *Tell your story to local media. Television, newspapers, communitymagazines are looking for human interest stories about people who have encountered a major illness and have undertaken the challenge to help others in a similar situation. LeAnn Cook facilitated a family interview in the local newsletter about the boys EPP struggles.The Fleegel family appeared in a documentary on EPP that aired …