Skip to main content

Awareness Week on Porphyria

Look at all the Donations coming In. Have you taken a moment to donate, it's all for a good cause: AMERICAN PORPHYRIA FOUNDATION Nonprofit Media Check it out at:
www.firstgiving.com under American Porphyria Foundation.

$4,579
Raised since 2011
25 fundraisers
146 donors
Campaigns (2)
APF Pet Beauty Contest
Ends 8/30/2012

Comments

Popular posts from this blog

Special Interview: Justin Hamilton and his life with CEP~ Congenital Erythropoietic Porphyria

Thank you Justin for participating in this interview. (Congenital Erythropoietic Porphyria)  (CEP)) We take a close look at a day in the life of Justin’s Life with CEP, well also learn what it is and just how rare it really is.  http://www.clinuvel.com/en/skin-science/skin-conditions/rare-skin-conditions/congenital-erythropoietic-porphyria-cepSo at what age did you start experiencing problems?  What were they?  When I was first born. They noticed in the hospital my urine was a red fluorescent color. They thought it had something to do with my kidneys. 
Did anyone else in your family have a history of CEP? No 
When and how were you diagnosed?  Where? When I was 6 months old. They did blood test and cultures. I was diagnosed at the McCook, Nebraska Clinic. (Currently 150 or less reported cases)
Did they get your diagnosis right the first time?
Yes, besides thinking it was my kidneys. Mom then noticed blisters when the sun would be on me. They then did test to find out I had CEP. 
How do you…

How To Make The Perfect Salad

How To Make The Perfect SaladAPR 9, 2013 BY RECIPE REHABWhether you’re a vegetarian, foodie, health-conscious mom, busy professional, or anything in between, there is a colorful, delicious salad just for you. If you haven’t found that perfect salad that you just love, you’re in the right place, because we are here to help you with our completely custom, foolproof salad how-to. Just pick what you like, pile on the nutritious ingredients, and enjoy a hearty, healthy, homemade salad…

Healthy Hint: Make your own DIY salad dressing and cut hundreds of calories out of your meal. Our Creamy Dill Ranch is just 19 calories and our Tomato-Herb Dressing is just 20 calories. We also love these Spring-fresh dressings: Fresh Strawberry Dressing for 26 calories and our 62-calorie Lemon-Mint Vinaigrette.
Get Inspired
Now that you are armed with all the elements to create salad perfection, you’ll need a little inspiration, no? Here are some of our favorite salads…• The Busy Lady – For the woman on-the-g…

Accused of Being a Hypochondriac, Lisa is Finally Diagnosed with Acute Intermittent Porphyria- Global Genes

Accused of Being a Hypochondriac, Lisa is Finally Diagnosed with Acute Intermittent Porphyria
A swollen stomach made her look pregnant, but the pain — “burning,” “shocking,” “horrible,” “out-of-this world,” as she describes it — was worse than childbirth, leaving her doubled over and gasping for breath. Symptoms came and went, seemingly at random. Vomiting. Constipation. High blood pressure. A racing pulse. Numbness in her hands. Paralysis in her right foot. Lisa Kehrberg spent several days in a hospital, but every test came back normal. And the doctors began to wonder if perhaps she had been under a lot of stress lately.