Members & Followers

Tuesday, December 23, 2014

Key 4—Protect Your Health


Key 4—Protect Your Health


“Shrewd is the one that has seen the calamity and proceeds to conceal himself.”  Taking simple protective steps can help you avoid much sickness and misery, as well as loss of time and money.
Keep yourself clean. “Hand washing is the single most important thing that you can do to help prevent the spread of infection and to stay healthy and well,” reports the U.S. Centers for Disease Control and Prevention. As many as 80 percent of infections are said to be passed on by unclean hands. So wash them often throughout the day. Do so especially before eating, preparing food, or dressing or even touching a wound, and do so after touching an animal, using the toilet, or changing a baby’s diaper.
Washing with soap and water is more effective than using alcohol-based hand sanitizers. Children stay healthier when parents train them to wash their hands and to keep them away from their mouth and eyes. Bathing every day and keeping your clothes and bed linens fresh and clean also contribute to better health.
Avoid infectious disease. Avoid close physical contact or the sharing of eating utensils with any who have a cold or the flu. Their saliva and nasal secretions can pass the illness on to you. Such blood-borne diseases as hepatitis B and C and HIV/AIDS are transmitted primarily through sexual contact, intravenous drug use, and transfusion. Vaccination can help to prevent some infections, but a wise person must still take necessary precautions when with someone who has an infectious disease. Avoid insect bites. Do not sit or sleep outdoors unprotected when mosquitoes or other disease-carrying insects are active. Use bed nets, especially for children, and use insect repellents. *
Keep your home clean. Make whatever extra effort is needed to keep your home tidy and clean, inside and out. Eliminate any places where water can collect and mosquitoes can breed. Litter, filth, and uncovered foods and garbage attract insects and vermin, all of which can bring in microbes and cause disease. If there is no toilet, build a simple latrine rather than just relieving yourself in a field. Cover the latrine to keep out flies, which transmit eye infection and other diseases.
Avoid injuring yourself. Obey safety laws when working, riding a bicycle or motorcycle, or driving a car. Make sure your vehicle is safe to drive. Use appropriate protective equipment and clothing, such as safety glasses, headgear, and footwear, as well as seat belts and hearing protection. Avoid excessive sun exposure, which causes cancer and premature aging of the skin. If you smoke, stop. Quitting now will significantly lower your risk of heart disease, lung cancer, and stroke. *

"Remember.....Research is the key to your cure!"

Friday, December 19, 2014

Key 2—Take Care of Basic Body Needs



Key 2—Take Care of Basic Body Needs

“No one ever hated his own body: on the contrary, he provides and cares for it.” Taking basic steps to care for yourself can make a world of difference in your health.
Get enough rest. “Better is a handful of rest than a double handful of hard work and striving after the wind.” The demands and distractions of modern life have whittled away at the time people spend sleeping. But sleep is essential to good health. Studies show that during sleep our body and brain repair themselves, benefiting memory and mood.
Sleep reinforces the immune system and reduces our risk of infection, diabetes, stroke, heart disease, cancer, obesity, depression, and perhaps even Alzheimer’s disease. Rather than artificially bypassing sleepiness—our natural “safety device”—with sweets, caffeine, or other stimulants, we should heed it and simply get some sleep. Most adults need seven to eight hours of sleep every night to look, feel, and perform their best. Young people need more. Sleep-deprived teens are more prone to have psychological troubles and to fall asleep when driving.
Sleep is especially important when we are sick. Our body can overcome some illnesses, such as a cold, if we simply get extra sleep and drink plenty of fluids.
Take care of your teeth. Brushing your teeth and flossing them after meals, and especially before going to bed, will help ward off tooth decay, gum disease, and tooth loss. Without our own teeth, we may not benefit fully from the food we eat. It is reported that elephants do not die of old age but that they slowly starve to death after their teeth wear down and they can no longer chew properly. Children who have been taught to brush and floss their teeth after eating will enjoy better health in youth and throughout life.
Go to the doctor. Some ailments call for professional medical attention. Early diagnosis usually results in a better outcome and less expense. So if you do not feel well, get help to find and eliminate the cause, instead of merely seeking to relieve the symptoms.
Regular checkups from accredited health-care providers can head off many serious problems, as can getting professional medical attention during pregnancy. * Keep in mind, though, that doctors cannot perform miracles. Complete healing of all our ills will take place only when God makes “all things new.”
"Remember.....Research is the key to your cure!"

Wednesday, December 17, 2014

Our New Medical Hero! Tara Cantley


Our New Medical Hero!
Tara Cantley is one of the most recent patient volunteers to enroll in the Longitudinal Study, Panhematin Study and the Natural History Study of Acute Liver (Hepatic) Porphyria. The APF flew Tara down to the University of Texas Medical Branch in Galveston, TX to meet with one of the leading experts on porphyria, Dr. Karl Anderson. Tara is excited to be a part of the very important research studies and be able to make a difference and help others.
Jessica from the APF was able to go down and visit with Tara while she was admitted to the UTMB hospital. They were able to chat for hours, after that Tara had finished her study requirements for the day. Jessica even had the unique opportunity to meet Dr. Anderson, along with one of Tara's wonderful nurses. Tara and Jessica enjoyed spending time together and it was a great experience for Jessica, who is new to the APF office. Tara understands how important the research studies are for both her and others affected by porphyria. She encourages others to volunteer and wants everyone to know: "Research is the key to our cure!"  We would like to thank Tara and all patient volunteers for participating in the research studies!

Become A Medical Hero!
We have a chance to have a treatment to prevent attacks of acute porphyrias (AIP, HCP and VP). However, researchers need You. Without you, we cannot move forward to do research to get the new treatments approved. Safety studies have already been done. You are needed. You will be flown to the research center at No expense to you. You donate your blood and have an exam and fly back home. The first part of the study does NOT include a drug trial. During this part experts study you your attacks and your blood. Then the second part of the study is the drug trial.
This study is extremely important to the understanding of porphyria, including why the pain associated with the disease is so severe, and why some people have symptoms and others don't.
The porphyria research centers are in San Francisco, Birmingham, Galveston, New York City, Salt Lake City, and Wake Forest at University of NC.
Become a medical hero. Please help us get a new treatment. Contact the APF office to learn more: 866.APF.3635.


                        "Remember....Research is the key to your cure!" 




Key 1—Eat Wisely



Key 1—Eat Wisely

“Eat food. Not too much. Mostly plants.” With these few words, author Michael Pollan encapsulates simple, time-tested dietary advice. What does he mean?
Eat fresh foods. Concentrate on eating “real” food—whole, fresh foods that people have been enjoying for millenniums—rather than modern processed foods. Commercially prepackaged foods and fast food from chain restaurants usually contain high levels of sugar, salt, and fat, which are associated with heart disease, stroke, cancer, and other serious illnesses. When cooking, try steaming, baking, and broiling instead of frying. Try using more herbs and spices to cut down on salt. Make sure meats are properly cooked, and never eat spoiled food.
Do not eat too much. The World Health Organization reports a dangerous worldwide increase in overweight and obese people, often the result of overeating. One study found that in parts of Africa, “there are more children who are overweight than malnourished.” Obese children are at risk of present as well as future health problems, including diabetes. Parents, set a good example for your children by limiting your own portions.
Eat mostly plants. A balanced plate favors a variety of fruits, vegetables, and whole grains over meats and starches. Once or twice a week, try substituting fish for meat. Reduce refined foods such as pasta, white bread, and white rice, which have been stripped of much of their nutritional value. But avoid potentially dangerous fad diets. Parents, protect your children’s health by helping them to acquire a taste for foods that are healthful. For example, give them nuts and thoroughly washed fresh fruits and vegetables for snacks instead of chips or candy.
Drink plenty of fluids. Adults and children need to drink plenty of water and other unsweetened liquids every day. Drink more of these during hot weather and when doing heavy physical work and exercise. Such liquids aid digestion, cleanse your body of poisons, make for healthier skin, and promote weight loss. They help you to feel and look your best. Avoid drinking excessive amounts of alcohol and too many sweetened drinks. One soft drink a day can add 15 pounds (6.8 kg) to your weight in a year.
In some lands, obtaining clean water can be hard work and is expensive. Yet, drinking it is vital. Tainted water needs to be boiled or chemically treated. Dirty water is said to kill more people than wars or earthquakes; it reportedly kills 4,000 children a day. For infants, the World Health Organization recommends only breast-feeding for the first six months, then breast-feeding plus some other foods until at least the age of two.

"Remember.....Research is the key to your cure!"

Monday, December 15, 2014

You Can Improve Your Health

As the family and holiday times approach many are concerned about their health the foods they eat and what simple measures they can take to ensure that they have good Health.  As always please follow up and ask any questions to your Primary Care Doctor, before beginning any changes in diet and daily routine.

You Can Improve Your Health

Rustam
RUSTAM, who lives in Russia, leads a busy life. In the past, he had some unhealthful habits but came to realize that he was paying a price for them. He stopped smoking and overindulging in alcohol. Still, long days in front of his computer left him feeling lethargic.
Although Rustam started work at eight o’clock in the morning, he rarely felt fully awake until ten, and he was often sick. So he made an adjustment to his routine. The result? “In the last seven years, I haven’t taken more than two sick days a year,” he reports. “I feel great—awake and alert—and I enjoy life!”
Ram, his wife, and their two small children live in Nepal. Sanitation is lacking in their neighborhood, and the area swarms with mosquitoes and flies. In the past, Ram and his family frequently suffered from respiratory problems as well as eye infections. They too made changes that greatly improved their health.

Take Control of Your Health!

Whether they are rich or poor, many people fail to see the link between their habits and their health. They may regard enjoying good health as a matter of chance or as something over which they have little control. Such a fatalistic view holds many back from improving their health and leading a more productive life.
In reality, whatever your financial circumstances, there are basic steps you can take to protect and greatly improve your own health and that of your family. Is doing so worth the effort? By all means! You can increase the quality of your life and avoid needlessly shortening it.
Ram and his family obtain clean drinking water
By word and example, parents can teach their children to form good habits, resulting in better health. The extra time and expense involved will be repaid in reduced suffering, less time lost to illness, and less money spent on medical bills. As the saying goes, An ounce of prevention is worth a pound of cure.
In the following articles, we will consider five basic keys that have helped Rustam, Ram, and many others. These keys can help you too!
"Remember.....Research is the key to your cure!"

Friday, December 12, 2014

Why Should I Help Others?







Why Should I Help Others?


 Two secrets that many people don’t know

Secret #1: When you give, you are likely to get back!
People will notice that you are generous. As a result, they’ll probably be generous to you. 
  • “Practice giving, and people will give to you. . . . With the measure that you are measuring out, they will measure out to you in return.”
  • “The way you treat others is the way you will be treated.”
Secret #2: When you help others, you help yourself!
Doing good things for others boosts your self-respect and makes you feel the satisfaction that comes from giving. The Bible puts it this way:
  • “There is more happiness in giving than there is in receiving.”
  • “When you spread a feast, invite poor people, crippled, lame, blind; and you will be happy, because they have nothing with which to repay you.”

 Young people who care

Young people who care about others are everywhere! Consider some examples.



“Sometimes when I just want to sit on the couch and watch TV, I think about my mom and dad, who are working, and how tired they are going to be when they come home. So I get up and wash the dishes, vacuum, and dust. I’ll also make a pot of coffee because my parents love coffee. When my mom gets home, she says, ‘Oh, it looks so nice in here! And it smells good too. Thank you so much, Sweetie!’ It always makes me feel good to do something nice like that for my mom and dad.”—Casey.



“My parents have always supported me, providing me with everything I need. So when they had a major problem with the car last year, I wrote a check to have it repaired, even though it was a large part of my savings. Of course, they tried to refuse my offer, but I wouldn’t take no for an answer. My parents deserve so much more than even that. And it felt great to be generous and give them something.”—Holly.
Did you know? Many young people among Jehovah’s Witnesses have experienced the joy of helping others through their Bible education work. Some have even moved to a foreign land where there is a need for Bible teachers.



“I moved from the United States to Mexico to help teach the Bible. Sometimes it’s difficult to be generous with money or things because I don’t really have much to give. But I’ve found that when I give of my time and energy in the ministry, that’s more appreciated than just giving materially.”—Evan.

 How can I help others?

Would you like to experience the joy that comes from helping others? Here are just a few suggestions.
To help your family:
  • Vacuum, do the dishes, or clean a room—without being asked
  • Cook a meal
  • Write a card of appreciation to your parents
  • Help a sibling with his or her schoolwork
To help those outside your family:
  • Send a card to someone who is not well
  • Do yard work for an elderly neighbor
  • Visit someone who is housebound
  • Buy a gift for someone who is going through a difficult time
Tip: Try to come up with a few ideas of your own. Then make it your goal to help out one person this week. You might be surprised how good you will feel!



“When you help others, you end up happy. You feel that you really accomplished something, and you see that others appreciate it. You may have had fun doing it—although at first you didn’t think you would. What you did may not even feel like a sacrifice, because in the end you gained so much.”—Alana.

"Remember.....Research is the key to your cure!"



Thursday, December 11, 2014

Patient meeting and the ASH convention

Patient meeting and the ASH convention
The APF just came back from the 56th ASH Annual Meeting, which was held in San Francisco, CA. More than 20,000 hematologists and health professionals in the field were in attendance. The APF educated physicians, professionals and everyone interested.
Also, in a few short months, the APF hosted four patient education meetings. Our last meeting happened last week in conjunction with the ASH convention. The patients had a unique opportunity to meet and hear the presentations given by the porphyria experts: Dr. Bissell, Dr. Phillips and our Protect the Future trainee, Dr. Bruce Wang.
We all thank the experts for the donating their time and giving wonderful presentations! We also thank everyone: patients, their family members and friends who attended. We are looking forward to seeing you on our upcoming meetings!

HealthWell Foundation
We would like to remind you about the HealthWell Foundation, that assists patients living with chronic and life-altering illnesses in paying their share of prescription drug copayments, deductibles, and health insurance premiums.
Since 2006, the HealthWell Foundation has provided copayment and premium assistance to eligible acute porphyria patients. Through the fully-automated grants process, patients are able to determine eligibility and apply online. Patients also have the option to contact the hotline at 800-675-8416 to speak directly with a HealthWell representative. Learn more about the HealthWell Foundation:www.HealthWellFoundation.org




"Remember.....Research is the key to your cure!"